DNA and Privacy: No Man is a Genetic Island

The recent identification of the Golden State Killer through a DNA database for genealogy is just one way your DNA may be used in unexpected ways. Lisa Louise Cooke shares 5 key principles to keep in mind when considering your online DNA presence.

 

Golden State killer case and others prompts important question

Recently, Paula in Canada emailed me about the Golden State Killer case, which I talked about in a special episode of the Genealogy Gems Podcast earlier this month. For those who haven’t heard, a serial criminal from decades ago, known popularly as the Golden State Killer, was recently identified in part after investigators submitted DNA evidence left at the scene to a genetic genealogy database. Paula asked how that case—and specifically the investigators’ use of a genealogy DNA database for a non-genealogy purpose—affects the genealogy community.

In the face of all the enthusiasm over DNA testing, the downsides of DNA testing for genealogy isn’t a popular topic. However, the lid is off of pandoras box  when it comes to DNA and there’s no putting it back on. Following the success of the Golden State Killer case, DNA evidence from over 100 crime scenes has recently been uploaded to GEDmatch (a website that provides free DNA and genealogical analysis tools for amateur and professional researchers and genealogists.), under the guidance of a new company (Parabon NanoLabs) that helps criminal investigators use genetic genealogy methods to identify genetic samples. Since DNA is here to stay, let’s talk about the varieties of ways that genealogical DNA testing results are being used may affect the genealogy community and the future of genetic genealogy.

DNA privacy for genealogists

In Genealogy Gems podcast episode #217 and here in this companion article, I share my own personal opinions. I invite you to listen to that episode and do your own homework before making your own decisions. Here, I summarize 5 principles to consider when it comes to sharing your DNA online:

1. Your data = dollars.

If you’re a Genealogy Gems Premium eLearning member and you’ve watched the Premium video Take Control of Your Family Tree, then you know your DNA data is already being shared within and beyond the genetic genealogy world. AncestryDNA and 23andMe have both discovered a lucrative market for the DNA data that their customers have paid them to process: the pharmaceutical industry. Read the Wired.com article on one partnership Ancestry has with the Google-owned biotech company called Calico. I’m not saying that this is bad or good. But it is happening. In the end we are each responsible for doing our own homework and making an informed and conscious decision about whether and how to share our DNA.

2. Look in the mirror: How are YOU using DNA databases?

Thousands of genealogists are already using genetic genealogy databases for purposes beyond privately building their family trees. Often, they want to connect with relatives they don’t know or with whom they aren’t in touch, and DNA becomes the “cousin bait.” For example:

  • Adopted children and birth parents trying to find each other
  • Locating estranged family members
  • Orphans trying to find long lost siblings and relatives

Individuals and agencies other than genealogists also use DNA databases to identify unknown human remains, such as John or Jane Doe cases and prisoners of war. All of these uses of DNA may be well within the parameters of how a genealogist would expect to see their samples used. But all of these uses can lead to tremendous consequences in the lives of those whose DNA is involved, not all of those consequences intended or positive.

3. Hang on to your restaurant napkin!

On a daily basis, in public places, we discard items that have our DNA on them. Many folks are concerned that the police may not be the only ones interested in picking them up. That’s very possible. In fact, waiters and waitresses pick up some of the best DNA samples on a daily basis: anything with saliva on it.

Why would anyone want your DNA? Well, we’ve all seen cases of accident victims being under surveillance to determine if they really are injured. DNA could reveal health issues of those seeking large insurance policies. Of course, it takes a bit of doing because the genealogy testing companies want you to submit the sample on the swab of their kit. In the podcast episode, I shared with you from my personal experience that it’s possible to work around that requirement.

We’re in the early wild west days of DNA. Who in the future might be incentivised to obtain your DNA?

4. We’re not the only ones interested in our DNA.

Those who may potentially be interested in your DNA go beyond even genealogists, crime fighters, and those who identify bodies. The list includes insurance companies, employers, governments, educators, and many more. A news article at news.com.au states that “In Australia, life insurers are allowed to ask if an applicant is considering having genetic testing, and can then use the results to determine their coverage — a decision not everybody thinks is fair.” It goes on to say that “in China, by comparison, authorities have reportedly collected DNA samples from millions of residents for the purpose of surveillance.”

5. No one is a genetic island.

Be aware that when you test, you are also making a decision on behalf of your parents, siblings, children, grandchildren, and future descendants. Your DNA (and accompanying tree data) could be used to identify them in the future in ways that help or harm them. Regardless of good intentions or stated ethics codes in the genealogy community, it isn’t possible to write and get the express permission of everyone who could be affected by you having your DNA tested. The water isn’t always crystal clear when it comes to DNA testing.

Resources

If you’ve already made the decision and have tested your DNA for genealogy, or you plan to, here are resources to help you navigate the process with greater awareness and success:

About the Author: Lisa Louise Cooke

About the Author: Lisa Louise Cooke

Lisa is the Producer and Host of the Genealogy Gems Podcast, an online genealogy audio show and app. She is the author of the books The Genealogist’s Google Toolbox, Mobile Genealogy, How to Find Your Family History in Newspapers, and the Google Earth for Genealogy video series, an international keynote speaker, and producer of the Family Tree Magazine Podcast.

Making Family History Accessible for the Visually or Hearing Impaired

Making your family history accessible to your visually or hearing impaired relatives may require a little extra work. But the effort can mean making your genealogy discoveries more available and vivid for EVERYONE–now and in the future. Let these ideas help you!

 

Making family history accessible

I’ve written and lectured extensively on making family history more interesting for the non-genealogists in our families, particularly the next generation. But kids and grandkids aren’t the only people we should be striving to reach.

Genealogy Gems Podcast listener Amanda recently wrote me about her situation. Her grandmother is interested in what she is discovering but has barriers to enjoying the information. Here’s what Amanda wrote:

“My grandmother is one of my only family members who is interested in my family history findings. She says that I have found information that she would have never known. Unfortunately, she is losing her vision, so showing her my findings is increasingly difficult. Do you have any ideas or resources that would help me present information in an organized manner that makes the information easier to read or makes use of her other senses? She wants to be able to read it, but I want to be flexible for her.”

How fortunate your grandmother is to have a granddaughter like you who cares enough to change up how you’re presenting the family’s story. Since she’s losing her vision, you can focus on other senses such as hearing. And since she would still really like to be able to read it, I’ve got some ideas for accommodating that as well. Let’s start by making text more readable.

Here are 3 ideas for sharing family history text with accessibility in mind:

 

MAKING FAMILY HISTORY ACCESSIBLE FOR THE VISUALLY IMPAIRED

  • Consider printing a short book in large type. I’ve used both Lulu.com and Shutterfly to create books. Take a look at the editing tools and try dramatically increasing the font size. (I go into much more detail on how to create a family history book with on-demand services likes these in Genealogy Gems Podcast episode 206.) Choosing a template and sticking with it will help you end up with a consistent set of volumes over time that are easy to read and enjoy as an on-going family story.
  • Create a free blog and set the type to a larger size. Some of the most popular free blogging services are Tumblr and Blogger.com.  Here’s an article that discusses accessibility in web design and shows great examples with Tumblr. It’s interesting to note that accessibility isn’t just about being able to see the text. Color-blindness can also create barriers to using websites and blogs.
  • Take a moment to show relatives with reduced vision how to increase the text size on all websites. It’s easy to do! Simply press the Control key and the Plus sign (Ctrl +) on your keyboard to enlarge the text on any web page, as shown here. In Google Chrome, once you hit Ctrl + one time, this little box pops up in the top right corner of the screen. If she can’t see well enough to use it to further enlarge on-screen material, she can keep hitting Ctrl +. That’s what I did to enlarge the screen here to make one of my family history blog posts easier to read. You can instantly return the font size to normal by using the Control key and the number zero. Or incrementally reduce it with Control and the minus sign.
  • To make your blog more user-friendly for the blind, follow these tips from the American Association for the Blind.
  • Adding tags to digital images makes them richer for everyone. Visually-impaired relatives particularly benefit because they can use their favorite voice-to-text tool or screen reader to read them. Here are some instructions for adding tags to digital images you upload to FamilySearch.org.

Accessible audio for the vision-impaired

If your visually-impaired relative has a smartphone or tablet and is comfortable using it, consider using a Cloud-based note-taking app such as Evernote or One Note to record “audio” notes that can be shared through the service. You can record yourself reading and commenting on your latest genealogical finds. Even if they don’t want to use Evernote, you can create your audio notes and then share them via private links, or even right-click on the audio file in the note and save it to your computer to be attached to a standard email.

If you want to really get into recording and editing your audio, I recommend the free audio editor Audacity (it requires a bit more tech know-how). You can save audio mp3 files to Dropbox or Google Drive for easy sharing.

Accessible video for vision impaired

It may not seem logical at first glance to create video for the vision impaired. But in fact, video as a medium is an easy way to deliver audio. If you have a free Google account you can upload your videos to YouTube, making them super-easy to access. In fact, if you visit my Genealogy Gems YouTube channel, you’ll see that I publish all of my audio podcasts as video.

You can create very simple videos using your recorded audio and just a single image. You can easily create these types of videos using free tools that come with your computer, or with video creation apps on your mobile device. (See my book Mobile Genealogy for my favorites.)

Sign in to YouTube.com with your Google account, and then upload your video. You will find an Upload button at the top of every page on YouTube, or you can go to Creator Studio in your account. Creator Studio is where you can manage your own free YouTube channel, which is where your relatives will find all of your videos in one place. The channel gives you many controls, including making your videos “private” and only accessible from a direct link, which you can email to your relative. All they have to do is click the link in your email and they will be taken to your video where they can listen to your latest family history stories on video. You can also mark your video as  “unlisted,” which will dramatically reduce the public traffic to it while still making it easily accessible to your relatives. You can learn more about uploading videos and creating your YouTube channel in my book The Genealogists’ Google Toolbox. 

 

YouTube for the Hearing Impaired: Once you are signed into YouTube with your free Google account, you will have the Creator Studio available to you. This is where you upload your videos. It also features a wealth of production tools including the ability to add subtitles and closed captioning. You have 3 ways to add the captions:

1. Upload a text transcript.
2. Transcribe in Creator Studio and auto-sync it to the video. Type or paste in a full transcript of the video and subtitle timings will be set automatically.
3. Create new subtitles or CC (Closed Captioning) by typing them in as you watch the video.

Start by creating a video that includes the family history information you want to share (photos, documents, old home movies along with narration, etc.). The newest and easiest way to create videos like this (which are more complex than the single image video mentioned for the vision-impaired) is to use a drag-and-drop video creation tool like Animoto (use the free version or purchase an affordable subscription to get HD-quality downloads without watermarks). You can easily and quickly create videos on either your computer or mobile device using the Animoto app for iOS or Android. Animoto offers a narration tool, or you can upload your own mp3 audio file to the project. Download the HD quality video to your computer for archiving, and then upload a copy of it to YouTube. Add closed captioning.

 

Sharing family history with all audiences

Let Genealogy Gems be your guide when it comes to sharing your family history via blog, book or video. Our website is packed with ideas to inspire just the right approach for sharing your genealogy discoveries, stories and photos with your relatives! Click here to explore family history writing ideas on the blog. Or watch this quick video for other sharing ideas. It’s a free preview of my full-length video class, Inspiring Ways to Capture the Interest of the Non-Genealogists in Your Family, available as part of your Genealogy Gems Premium eLearning membership.

About the Author: Lisa Louise Cooke

About the Author: Lisa Louise Cooke

Lisa is the Producer and Host of the Genealogy Gems Podcast, an online genealogy audio show and app. She is the author of the books The Genealogist’s Google Toolbox, Mobile Genealogy, How to Find Your Family History in Newspapers, and the Google Earth for Genealogy video series, an international keynote speaker, and producer of the Family Tree Magazine Podcast.

Unclaimed Persons Celebrates 10th Anniversary

Ten years ago, Unclaimed Persons launched as a volunteer effort within the genealogical community to help coroners reunite unclaimed bodies with their families. Here’s what Unclaimed Persons has accomplished over the past decade–and how you can join the growing effort.

Thanks to Unclaimed Persons for sending us this press release.

Ten years ago this month, Unclaimed Persons online genealogical community was established to reunite deceased individuals’ remains with their families. A decade later, we celebrate this milestone anniversary and our members who help to ensure every life is worth remembering.

Unclaimed Persons began in June 2008 shortly after the airing of a video by the same name on RootsTelevision.com (you can watch it below). The program, which featured genealogist Megan Smolenyak and coroner investigators searching for two individuals’ next of kin, introduced its audience to a quietly growing epidemic of people going to their graves with no known relatives to claim them.

Following the video release, Megan was flooded with emails from other family historians offering their help. In response to this outpouring, she established Unclaimed Persons as a coordinated volunteer effort for genealogy sleuths to gather in a virtual setting and assist coroners and medical examiners in addressing this critical issue.

Over the past 10 years, Unclaimed Persons has logged 839 cases from 58 coroner and medical examiner agencies in 23 states and consistently maintains a 70% solve rate. Thank you to our members who have devoted countless hours to this effort and to the following volunteer leadership over the past decade for managing behind-the-scenes operations and juggling multiple cases at any given time:

  • Directors – Janis Martin, Arwen Newman, Vreneli Doyle
  • Case Administrator – Cathy Blancato
  • Document Administrator – Linda Herrick Swisher
  • Founder – Megan Smolenyak
  • Retired Directors – Linda Driver, Keri Maurus, Skip Murray
  • Retired Case Administrators – Dee Akard Welborn, Robert Baca, Marcia Bignall, Terry Elliott, Robin Geiger, Stephen Hall, Thomas MacEntee, Donna Martin-Netherton, Lorine McGinnis Schulze, Ana Oquendo-Pabón, Audrey Speelman, Kathy Then

Please join us in celebrating our anniversary and success by following us at www.facebook.com/unclaimedpersons. To become an Unclaimed Persons’ member, visit https://unclaimed-persons.org/volunteers/.

Lacey Cooke, our Genealogy Gems Service Manager, has a degree in forensic anthropology. She’s witnessed first-hand the cold and lonely story of unclaimed persons. Click here to read about her personal experiences working in coroner’s offices and with human remains, and why that made her want to share the Unclaimed Persons effort with everyone.

About the Author: Lisa Louise Cooke

About the Author: Lisa Louise Cooke

Lisa is the Producer and Host of the Genealogy Gems Podcast, an online genealogy audio show and app. She is the author of the books The Genealogist’s Google Toolbox, Mobile Genealogy, How to Find Your Family History in Newspapers, and the Google Earth for Genealogy video series, an international keynote speaker, and producer of the Family Tree Magazine Podcast.

Finding a Birth Father Using DNA: “How We Did It”

Finding a birth father using DNA is possible but can be hit-or-miss with DNA alone. Read this story about how the experts at Legacy Tree Genealogists combined DNA testing results with historical research and family knowledge to help one woman find the answers–and relatives–she desperately wanted.

Thanks to Legacy Tree Genealogists for contributing this guest article. Learn more about them below!

Father’s Day in the United States is celebrated on the third Sunday in June—a day filled with honoring and cherishing the special men in our lives. However, for those who feel the aching emptiness of never having known their biological father, it can be a difficult 24-hours cognizant of the void felt far too often throughout the year—a painful reminder of the ever-present absence in their lives.

At Legacy Tree Genealogists, we are often contacted by individuals seeking assistance in finding information regarding biological family members. Utilizing advancements in genetic genealogy and thorough genealogical research, we have helped many clients find closure. Recently we helped client Lisa McArthur (not her real name, but her story is shared with permission) to locate her biological father, and so for the first time in her life, this Father’s Day is a momentous occasion she looks forward to—the first celebrated with her biological father.

Lisa McArthur of Fort Worth, Texas, USA, hired us to help her find her Jamaican biological father and half-brother. She knew only their names and did not know their whereabouts or even whether they were still living. She hoped we could use DNA to identify her father’s Clarke ancestors in Jamaica and then trace their descendants until we found someone who could tell us more about him.

Lisa had already taken autosomal DNA tests at Family Tree DNA, 23andMe, and Ancestry.com. She had corresponded with several genetic cousins at Ancestry.com and 23andMe who are likely related to her through the Clarke family, but she had not been able to figure out how.

Finding a birth father: How we did it

We reviewed Lisa’s ethnicity admixture results at 23andMe. Through this review, we determined that both of her parents had predominantly African ancestry and that her biological father was likely Afro-Caribbean, just as she reported.

We then reviewed Lisa’s closest genetic cousins at the various testing companies, paying particular attention to those genetic cousins from Jamaica. One of them, a confirmed second cousin [Cousin 1], the client already knew was the grandson of Elmer Clarke. We searched for information on Elmer Clarke and soon found his birth record showing he was the son of Leslie George Clarke and Anne Dixon.

finding a birth father with DNA birth record FamilySearch

Birth record [name removed for privacy]. Obtained from FamilySearch.org.

By carefully evaluating the shared centiMorgans between Lisa and Cousin 1, we determined that her biological father may have been a grandson of Leslie George Clarke and Anne Dixon.

We found another close match at 23andMe [Cousin 2] who was likely a third cousin to Lisa. Based on her previous correspondence with him, we knew that Cousin 2’s great-grandparents were Roland Lee, Hermina Murry, Obadiah Brown, Juliet Higgins, Henry/William Dennis, Ida Thomas, Basil Hamilton, and Ira Thomas/Barrett, all predominantly from Jamaica.

We reviewed the DNA that Cousin 2 shares in common with Lisa and discovered that two of the three segments where he overlaps with her are also shared in common with another match [Cousin 3], creating triangulated segments. When two individuals match a test subject and each other on the same segments of DNA, the segments are considered to be triangulated. This means that the common ancestor between Cousin 2 and Cousin 3 is also one of Lisa’s ancestors.

Adding traditional research to DNA results

Through standard genealogical research, we found that Juliet Higgins (the great-grandmother of Cousin 2), from Saint Andrew, Jamaica, was allegedly the daughter of John Higgins, although we could not find a birth record to prove it. We also confirmed that Cousin 3 was the granddaughter of John Higgins and Charlotte V. Graham of Saint Andrew, Jamaica. Additional research yielded convincing evidence that the great-grandfather of Cousin 2 was the same John Higgins as the grandfather of Cousin 3. Correspondence with the son of Cousin 3 indicated that John Higgins was “a ladies’ man who had many children” with multiple women.

Since Cousins 2 and 3 both reported a common ancestor with the Higgins surname from Saint Andrew, Jamaica, we expected that Lisa also had a Higgins ancestor from the same place, perhaps even the same John Higgins.

We hypothesized that Lisa’s biological father was a nephew of Elmer Clarke, the grandfather of Cousin 1. Through previous research, Lisa had already identified four brothers of Elmer: Geoff Adolphus Clarke, Neil Clarke, Douglas Alexander Clarke, and Lane George Clarke. Through careful genealogical research, we were able to eliminate all but Douglas Alexander Clarke as Lisa’s likely grandfather. Douglas married Angeline Higgins on 21 August 1935 in Holy Cross Church, Saint Andrew, Jamaica. Angeline Higgins was reported to be the 20-year-old daughter of Samuel Higgins and was a resident of Story Hill, Cavaliers, Saint Andrew, Jamaica. Based on the amount of DNA that Lisa shares in common with Cousins 2 and 3, we might expect that Angeline’s father, Samuel, may have been another son of John Higgins with an unidentified mother.

finding birth father DNA marriage record LTG image

Marriage record [names removed for privacy]. Obtained from FamilySearch.org.

Given that the marriage of Douglas Alexander Clarke and Angeline Higgins represents a union between the Clarke family and the Higgins family, both of Saint Andrew, Jamaica, we proposed that they were the most likely grandparents of Lisa.

Through additional family collaboration, Lisa was able to learn that her father is still living, just eight hours away from where she lives, and that she has five other siblings, including the half-brother she had heard about. Furthermore, Lisa was able to confirm that our DNA research was exactly right, since her father’s mother, Angeline Higgins, is still living at the age of 102!

Let Legacy Tree Genealogists Help You

If you have hit a frustrating DNA brick wall in your research like Lisa did, join forces with the pros at Legacy Tree Genealogists. Their team of experts has the skills to help you combine DNA results with traditional research to help with challenging questions, such as finding your birth relatives. Learn more at www.legacytree.com. Even better, use our exclusive coupon code GGP100 to receive $100 off a 20-hour (or more) research project.

Disclosure: This article contains affiliate links and Genealogy Gems will be compensated if you make a purchase after clicking on these links (at no additional cost to you). Thank you for supporting Genealogy Gems!

Episode 218 – It’s All About You

The Genealogy Gems Podcast
Episode #218
with Lisa Louise Cooke

Download the episode

In this episode, Lisa answers your questions and shares your comments. Hot topics on your minds that are covered in this episode:

  • discovering new records online,
  • working with other people’s online trees,
  • hard-to-locate military records;
  • and getting help with early Pennsylvania research

NEWS: GOOGLE EARTH STORIES COMING

“Google Earth to let users post stories, photos in coming years” at DNAIndia.com

Lisa’s FREE Google Earth video class: How to Use Google Earth for Genealogy

The Genealogist’s Google Toolbox, 2nd edition and Google Earth for Genealogy Video Series

Try Google Earth for Chrome (you must use the Chrome browser to access)

Download the free Google Earth Pro software.


NEWS: FAMILYSEARCH REACHES 2 BILLION IMAGES

Why you should have a free FamilySearch account and use it!

How to use the FamilySearch Catalog (it’s free! Everyone should use it!)

Best strategies for accessing content at FamilySearch.org (special podcast episode on the end of microfilm lending)


GEMS NEWS: LISA’S NEW COLUMN IN FAMILY TREE MAGAZINE

Purchase the May/June 2018 issue

Subscribe to Family Tree Magazine in print, digital, or both!

 


StoryWorth for Father’s Day: Invite your dad to share stories with loved ones every week, and then get them all bound in a beautiful hardcover book at the end of the year. Go to http://www.storyworth.com/lisa for $20 off when you subscribe. This Father’s Day is actually a gift for you, too!

 


BONUS CONTENT for Genealogy Gems App Users

If you’re listening through the Genealogy Gems app, don’t forget to check out your bonus content for this episode! The Genealogy Gems app is FREE in Google Play and is only $2.99 for Windows, iPhone and iPad users.

MAILBOX: SARA’S FRIDAY RECORD POST DISCOVERY

Click here to view several recent Friday records posts and see what new records have appeared online lately!

Tell Lisa Louise Cooke about your “Friday records post” discoveries or anything else at genealogygemspodcast @ gmail.com or call the podcast voicemail at 925-272-4021.


MAILBOX: ONLINE FAMILY TREE MATCHES

Reviewing tree hints at Ancestry.com


MAILBOX: BACK TO RESEARCH AFTER 10 YEARS!

Lisa’s recommendations to a new Genealogy Gems Premium eLearning member for getting back into the swing of research:

Watch the Premium video, “Take Control of Your Family Tree” (Premium eLearning membership required)

Listen to the Family History: Genealogy Made Easy podcast by Lisa Louise Cooke. It’s a great series for learning the research ropes and well as refreshing your skills.

Lisa Louise Cooke uses and recommends RootsMagic family history software. From within RootsMagic, you can search historical records on FamilySearch.org, Findmypast.com, and MyHeritage.com.

Keep your family history research, photos, tree software files, videos and all other computer files safely backed up with Backblaze, the official cloud-based computer backup system for Lisa Louise Cooke’s Genealogy Gems. Learn more at https://www.backblaze.com/Lisa.Backblaze


MAILBOX: MILITARY DRAFT REGISTRATIONS

Click here to read about finding military draft registrations

INTERVIEW: JIM BEIDLER ON PENNSYLVANIA RESEARCH QUESTION

James M. Beidler is the author of The Family Tree Historical Newspapers Guide and Trace Your German Roots Online. Learn more Pennsylvania research techniques in his on-demand webinar download, Best Pennsylvania Genealogy Research Strategies.

Click here to read a summary of some of Jim’s tips AND find a collection of links we curated to help you find more Pennsylvania birth records online.

MyHeritage.com is the place to make connections with relatives overseas, particularly with those who may still live in your ancestral homeland. Click here to see what MyHeritage can do for you: it’s free to get started.

 

FREE NEWSLETTER:  Subscribe to the Genealogy Gems newsletter to receive a free weekly e-mail newsletter, with tips, inspiration and money-saving deals.

PRODUCTION CREDITS

Lisa Louise Cooke, Host and Producer

Sunny Morton, Editor

Hannah Fullerton, Audio Editor

Lacey Cooke, Service Manager

Disclosure: This page contains affiliate links and Genealogy Gems will be compensated if you make a purchase after clicking on these links (at no additional cost to you). Thank you for supporting this free podcast and blog!

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